Webinar: Women with Bleeding Disorders: What They Have & What They Need | Factor My Way
Hemophilia Characteristics Among Women and Girls Receiving Care in Specialized Treatment Centers in the United States
von Willebrand Disease and Pregnancy
What I would tell a woman struggling with Hemophilia…
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Hemophilia Carriers at High Risk for Heavy Bleeding After Childbirth
Female Factors magazine is designed for young women with bleeding disorders. This booklet aims to explain bleeding disorders in detail in a way that is easy to understand for you, your family, partner or friends.
Track your cycle and flow with HFA’s Blood Sisterhood app specifically designed for women with bleeding disorders.
New VWD diagnosis and management guidelines are here!
Could a bleeding disorder be the cause of your heavy period? Check out The Period Girl podcast featuring The National Hemophilia Foundation
Don’t wear your favorite clothes around the dates your menstrual cycle is due.
Don’t wait too long to change your pad or tampon.
For cramps, try disposable heating pads that stick to your skin under your clothes. You can find them at a drugstore.
Get moving! Your body releases endorphins which help with your moods and cramps.
Use a dark towel on your bed to protect your sheets.
Avoid swimming during your heaviest flow.
Plan for your menstrual cycle. Look at your calendar/period schedule and plan for extra clothes and period supplies.
Follow the recommendations of your hematologist.
Keep a small bag with extra pads or tampons and an extra pair of underwear in your locker or car.
Keep a sweatshirt or sweater in your locker or car. You can use it to wrap around your waist (in case you bleed through your clothes).
Keep an extra pair of pants in your locker or car.
Speak to your school nurse and your parents or guardian to make arrangements to be able to use the restroom as needed during your menstrual cycle.
A menstrual cup is a small, flexible cup made of silicone or latex. It is used to catch and collect your flow instead of absorbing it. There are disposable options, but most are reusable. When full, simply empty, wash and reinsert. It can be worn up to 12 hours, depending on your flow, and it holds more fluid than a pad or tampon. Cups can hold up to 1 ounce, that’s about 2Xs the amount of a super-absorbent tampon or pad.
These washable, reusable underwear are designed to absorb your period. These undies can be used alone or as a second protection, the same way you would use a tampon and a pad. They also come in different absorbencies, sizes and styles to appeal to everyone. They look and feel like your regular undies but with all the protection.
Cloth pads are a reusable feminine hygiene product. You can use them as an alternative to disposable sanitary napkins. Using reusable products can save you money over time. It also helps to keep disposable products out of landfills. Cloth pads are made of fabric, this leaves the plastic off you, as well as some chemicals that companies do not have to list on their packaging.
National Hemophilia Foundation Resources
Snapshots of VWD Guidelines | National Hemophilia Foundation
Hemophilia Federation Resources
Hemophilia A Carriers Demonstrate of Structural Joint Changes
CSL Behring Stimate Recall
World Federation of Hemophilia
ASH ISTH NHF WFH 2021 guidelines on the management of von Willebrand disease | Blood Advances | American Society of Hematology (ashpublications.org)
Make sure to check with your local hemophilia chapters for any support groups, program or events.
For further discussion, information, or to speak with a nurse, contact Kelli at firstname.lastname@example.org or via voice/text at 908-930-6445